There are long term physical consequences to having Poliomyelitis.  There are am estimated 12-20 million people living in the world now who have had polio.  It is thought that at least 75% of those will experience new symptoms that are related to their prior polio infection:

  • decreasing tolerance to cold temperatures

  • pain in joints and/or muscles

  • rapid muscle tiring or feeling of exhaustion

  • new weakness in muscles, even those not previously affected by the initial polio

  • problems with breathing, swallowing and/or sleeping

This site will attempt to provide you and your loved ones with resources and links to help you understand and adjust to living with PPS in the best possible way.  The Polio Survivor group in Tucson, Polio Epic has put together an information sheet, Post-Polio 101, which explains the syndrome in a concise manner.  Click on the link to see a PDF version which you may print out for your own use.

Polio Echo Projects

  1. Polio Echo is going to start a Registry of Polio Survivors in Arizona for statistical purposes.  Names and personal information will not be sold or given out.  I would encourage anyone wanting to share their polio experience to write their story down and send them to Polio Echo, P o Box 61024, Phoenix, AZ  85082.

  2. Polio Echo is compiling a list of Physicians located in the greater Phoenix area.  If you are or know of a Physician (i.e. your PCP) who is knowledgeable in Polio or PPS, please contact us at the e-mail address below. Members, please check with your doctors and let us know if they are willing to be included in our Physician's List. Check the menu for the latest revision of the list.

 

We are in the Phoenix, AZ area and you can get in touch with us:

Polio Echo, Inc.
P.O. Box 61024
Phoenix, AZ 85082
Click to Enlarge
Copyright 2010 Polio Echo, Inc. All rights reserved.